Now add in that there’s no way to prove what you are feeling is real. Every single test has come back negative. (And you’ve taken hundreds of tests.) Imagine that amid the fatigue, chronic pain and hypersensitivity, as you try to convince yourself to press on, you overhear people talking about how they are “over your Fibro” and how much you complain about your pain. Imagine hearing that all of your suffering is something you made up in your head.
Here are 25 Things People Without Fibromyalgia Should Know About People With Fibromyalgia.
If you know someone with Fibro and want to understand them better,Are you a Fibro warrior? Share this post to spread awareness and understanding.
- Give gentle hugs please, my skin hurts
- I can sleep all day and still feel like I just ran a marathon
- When i’m tired, let me sleep
4. If i cancel my plans with you, don’t be mad, I already feel bad
5.If i went out last night, I need a day to recover, its ok, it was worth it
6.When I’m in a flare, leave me alone in a dark room (but check in), it makes me feel good
7. Every morning is a tough morning8. Your friend with Fibro that has no pain doesn’t make me feel any better
9. “You should exercise” My work day is my exercise
10. Certain foods make me flare-up (ie) peppers of any kind, sugar, caffeine11.Yes, diet matters but in flare mode, all bets are off
12.Because of Fibro, I get to spend more time with my husband
13. Bright lights, loud noise and too many smells over-load my senses and make me nauseous
14. My day, week and month are carefully planned to accommodate my Fibro
15. Yes, my face is swollen, no I didn’t gain 5 pounds overnight. (I’m flared!)
16. I have 3 different sizes of clothes in my closet to accommodate flare vs. non flare days
17. I play hide and go seek with the elements, too cold, too rainy, too hot, too much sun
18. To you, car rides are joy rides. To me, they’re a painful roller coaster ride.
19. Going to the doctor makes me mad, it’s a reminder of my condition
20. Some days it’s Ok to let my Fibro win, it reminds me that this is a marathon, not a sprint.
21. I can get moody, you would be too if you were in pain all the time, be patient with me
22. I can tell your mood as soon you walk in the room because my Fibro/spidey-senses are tingling
23. There are no no-pain days but my low-pain days are my happy days
24.Because of Fibro, the mandated down-time gives me the opportunity to write this blog, and I’m grateful
25. Because of Fibro, I’ve become part of a strong, supportive community that reminds me I’m never alone
Part of my mission is to bring the Fibromyalgia Survivor community together to offer real support and encouragement to one another. You can be part of this movement by sharing your story too. What do you want people to know most about how your Fibro affects you? Tell us in the conversation below.
Disclaimer: I am not a doctor. All information presented should be regarded as friendly advice and opinions based on my own experience and research. I am not making an attempt to prescribe any medical treatment and the information contained in this blog is not intended to replace a one-on-one relationship with a doctor or qualified health practitioner.
